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Little me at six.

Little me at six.

Welcome to Mutant Me, an honest and sometimes irreverent account of my life with Lynch Syndrome.

I’ve learned a lot through my genetic adventures during the last few years – lessons that have helped me to grow in body, mind and spirit. That’s the terrain I aim to cover at Mutant Me.

I’m not a physician or healthcare specialist, but I am a storyteller by nature and profession. I make sense of the world by stringing words together one sentence at a time until I create something that rings true. Profound or whimsical, dramatic or reassuring, the stories we tell have the power to change memories, hearts and minds.

In fact, it was a story told by a seamstress to a doctor at the the turn of the last century that led me (and in a broader sense, anyone diagnosed with Lynch Syndrome) on this journey of genetic tests and medical breakthroughs. I’m proud to be a part of that brave woman’s family tree. I hope my words will do her life justice.

It’s also my hope that others might benefit from the stories I share here, and that my words might lead to understanding, inspiration and even a few laughs along the way.

Thanks for stopping by!

Ami McKay

 

previvor

previvor

Previvor. Are you familiar with the word? Chances are if you’ve seen or heard it before, it’s been in reference to someone who carries one of the BRCA genes that predisposes them to breast and ovarian cancer. (Think Angelina Jolie.) BUT the thing is, by it’s definition, the word previvor can and does apply to ALL
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Down the hatch, without a scratch.

Down the hatch, without a scratch.

Happy World Sword Swallower’s Day! Two important threads have run throughout my work as a writer in recent years. One is my passion for exploring stories that are inspired by events or movements in medical history, and the other is my admiration and respect for sideshow folk. While writing my play, “Jerome, the Historical Spectacle”
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Prep and Landing

Prep and Landing

Tomorrow I’ll make my way to the hospital for my thirteenth annual colonoscopy. Fingers and toes crossed, all will be well. Lucky thirteen! Even though I’ve been through the procedure many times before, seeing the date for my appointment circled on the calendar still makes my belly lurch, still jangles my nerves, still pushes my
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